Research line

Nodding Syndrome


Main researcher(s)

Michael Boele van Hensbroek
Michael Boele van Hensbroek

Nodding Syndrome (NS) is an unexplained neurological illness that has been reported in three African countries (Uganda, South Sudan and Tanzania) and mainly affects children for the first time when they are between 5 and 15 years of age. NS is characterized by head-bobbing spells. The onset of the spells is often followed, years later, by other types of seizures, growth faltering and cognitive deterioration. There is an urgent need for more detailed investigation into NS in order to address the outstanding questions with respect to prevalence, natural history and aetiology. The findings of this study will be critical for health care providers to plan and improve their NS treatment and preventive programs.


study period

The study started in 2015 and ended in 2021


Screened Households

The field and hospital teams have screened close to three thousand households


Children indentified

The research team identified 500 chilren


Children hospitalized

Seventy children were taken to the hospital for detailed investigations


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